A Conspicuous Family

This post is all about grocery stores.

Yes, I know– how exciting does the Kelly house get? Soon, I’ll be sharing about dry cleaning, and maybe even cleaning out the lint trap. But no, there’s something that keeps coming up practically every time we go out on seemingly mindless errands. You see, we’re a conspicuous family.

Though we heard the phrase used over and over again when we first looked into adoption, especially international, it really didn’t take hold until we had our little boy in our arms. We talked about it during our homestudy interviews, and we discussed it at length at home before we met Alexander.

Overall, our experience with others who either 1.) aren’t familiar with cleft lip/palate, 2.) seem confused to see a Chinese-born American toddler with us, 3.) seem confused to see Alexander’s level of dexterity and alertness compared to his size has been overwhelmingly positive. We’ve gotten our far share of odd comments about Alexander’s steri-strip (which I can’t really blame them for– it looks as though we’re taping our kid’s mouth closed).  And fortunately, I can count on one hand the number of negative interactions we’ve had, where people are clearly uncomfortable with our family and/or Alexander’s cleft.

Even though we’ve been home for several months, it is still a little overwhelming that almost every outing involves a discussion with someone about cleft lip/palate, adoption, or China with complete strangers. Most of the time, people just comment about Alexander’s obvious adorableness and ask about his bandages. Sometimes, a Shriner introduces themselves and will bust out their business card for us, as they provide free medical services for cleft kids.  Usually, the only negative comments are from children, and those are mostly because they are confused and a little frightened. At first, I was really angry when we got weird looks, but I’m settling into the fact that our lives will be opportunities for education and sharing, and we need to be understanding that seeing a multi-racial adoptive family and a child with medical needs isn’t run-of-the-mill.

So back to the grocery store. One of my first outings with Alexander after we came home from China was to a grocery store to grab something from the deli. Within 15 seconds of grabbing a number at the deli counter, I was then fully engaged in a conversation with the woman behind the counter about international adoption and malnutrition. Soon, she was calling all her friends from the bakery over to meet Alexander.  Now we get waves, and he’s practically a little celebrity at our local stores, especially Target. Even at JC Penney, I was asked once by an employee where my son was when I was browsing sans Alexander.

I know someday, we’ll blend back in, and we’ll be just another family. But for now, we’ll stick out, occasionally people will point and whisper, and we’ll have the opportunity to share the incredible blessing of Alexander in our lives.

And now, for your regular update of adorableness….

Mama, tear down this wall!

Mama, tear down this wall!

 

 

 

 

 

 

 

 

 

 

Behind Bars

Well, it’s finally happened.

After several somewhat luxurious months of Alexander moving at a snail’s pace, our little man has taken off! When we’ve been asked what the greatest challenge is so far in raising Alexander, our usual answer is the speed at which he’s changing. Yes, all kids grow and change quickly, but it’s eye-opening to watch a little boy go from being unable to sit up to cruising (look at that mommy word!) in three months. He’s catching up physically incredibly quickly, and his teeth are coming in like crazy– it’s almost as if his entire body is suddenly going into overdrive to make up for lost time.

So after a lot of makeshift barriers and trying to keep our kid contained, Brian went out one night early this week on a mission for a baby gate.  Though I initially felt a little guilty gating Alexander out of our kitchen (and subsequently, our stairs), it’s provided a great deal of relief. It almost felt as though Alexander changed from a slow crawl to a super-speedy

The only one in our home enjoying the new baby gate more than me is Benny!

Benny endorses this baby gate.

little man overnight! It was late last week that under supervision, he did a full ascent of our stairs, sat at the top, and clapped for himself. Luckily, he’s not so thrilled with trying to get back down, so he usually just sits at the top and waits to be carried back down.  In any case though, the stairs and the kitchen are by far the most interesting places in our home now. I can’t even begin to explain how great it was to unload the dishwasher without a little boy drooling on all the clean silverware. I know this is just me dipping my big toe in the ocean of parenthood, but an empty dishwasher (even if just for a second) is a thing of beauty.

Aside from Alexander’s significant physical developmental strides (quite literally!), we’re noticing him increasing his communication with us, especially through mimicry and signing. I just about broke down into tears during breakfast once this week when he signed “kiss” to me; after a quick kiss on the nose, he smiled and clapped. Considering the  coordination needed for this sign, I was more than surprised that he picked up on that one before some of the simpler ones (like “eat” and “ball”). Now, his favorite signs are “kiss,” “baby,” and “cat.” While he can’t say his name, he can make out an “Ahh-lahhh” when we practice saying things. We’ve started saying grace with him before his (five!) meals, and he gives an emphatic “La!” after we say “Amen.” I know that his brain is still developing as far as content and context is concerned, but we are definitely noticing more repetitive responses from him, which is really heartening.

Alexander checking out the Toys R Us ad-- yet another incredible unstaged photo!

Alexander checking out the Toys R Us ad– yet another incredible unstaged photo!

This week, we have someone from the county coming out to discuss the early intervention program and to get Alexander set up with initial assessments. Although we continue to struggle with lots of parenting issues, I feel as though we’ve been spared up to now from the nightmarish “child development” charts. Talk to a new parent, and by their third pediatric appointment, all you hear about is percentiles.  For Alexander, we cheered when his head finally made it on the chart, but we’ve never really put much thought into where he compared to other kids his age. For the first time though, we’ll be getting a full assessment to see what programs he qualifies for and which ones might benefit him before he starts school a few years down the line. Even with the assessments though, each one of his successive surgeries will change his physical and developmental stages so much, that everything to us is just a sliding scale and a work in progress.

I’ll end with what I consider a fairly comical paranoid parent story. After watching Alexander interact with a classic stacking ring tower at the children’s hospital, we decided it was a good addition to our home. We picked one up, and for several days, I played with him using the toy, encouraging him to try stacking the rings on the tower rather than banging them together or sucking on them (two of his favorite forms of play).  The few times he attempted stacking them, he usually tired of it within seconds and soon was back to his books.

One day last week during Alexander’s playtime, I was fooling around with my new jade bracelet, slipping it on and off my wrist. Alexander looked at me and my wrist, and after a loud “la!” he began pulling the rings off the stacking tower, and slowly threading them all onto both of his arms. I handed him two additional rattles, which he happily added to his full arms. Soon, he was smiling and clapping with his plastic ring-laden arms. And to think that I was worried about his hand-eye coordination. It just goes to serve that most of the time, we just need to relax and let them figure things out!

Alexander demonstrating how his prefers to use his stacking rings.

Alexander demonstrating how he prefers to use his stacking rings.

 

 

 

In the System

You would think that by this time, they’d have mug shots of Alexander and I up at our favorite home and garden store. No, no, we have never committed a crime, but we are forcefully pleasant when it comes to following up on poor plant stock organization. Today’s awesome bargain was a beautiful variegated rhododendron that was apparently mismarked. After speaking to a sales associate back in the plant section and having the great price confirmed, I went to check out and inevitably was told that it was full price. As Alexander proceeded to work it with smiling and waving, I implored the cashier to go back and check the display and talk to her fellow employee. If there’s one thing that irritates me to no end, it’s improperly labeled sales where the only thing actually applicable for a sale is “between the ashtrays and the thimble, anything in this three inches right here, that includes the chicklets but not the erasers.” (Two points if you get the movie reference!)

The end of this story is that the cashier didn’t want to fact-check me (which I wish she would have), and Alexander and I walked out with our fantastic rhododendron.  Call me a nitpicker or a customer service nightmare, but let me tell you– after continuing to survive the red tape of multiple levels of several governments as recent as 5 minutes before our plant purchase, I can say with confidence that technicalities are my specialty.

And you probably thought that we were finished with jumping through hoops and cutting through red tape!

Though Alexander was officially a US Citizen as soon as DHS handed him back his stamped passport, we knew his road to being a full-fledged, card-carrying (quite literally) American was still fairly long. Luckily, our adoption agency gave us a heads-up as to what we needed to apply for, what to remind people to send us, and how patient we should be with Our Government.

In order for Alexander to apply for a social security number and become eligible for credit cards, political mailings, and of course, identity theft, we would need to provide proof that he is a US Citizen. Because of recent laws changing the way internationally-adopted children can become citizens, Our Government needed to create a physical document certifying that yes, Alexander is officially a citizen. We were informed while in China by the US Consulate that these would be mailed out to us within 60 days of our return home, at which point we should then apply for his social security number.

As most things tend to go when it comes to standard paperwork windows, I patiently waited our 60 days.   On day 61, I fired an email out to USCIS inquiring about our little guy’s Certificate of Citizenship (sounds official, no?). I received a most polite and apologetic email within the hour! Apparently, USCIS is way behind in issuing these, and the estimated turn-around (had we not contacted them) was upwards of 4 months. Since we had directly inquired about his paperwork status, my case was expedited, and I was promised that his forms would be mailed out within the week.

True to their word, I received two emails days later with both a UPS tracking code, and a personal email from a USCIS officer thanking us for our patience and for following up. Our Government continues to surprise me with how efficient it can be when it’s on a person-to-person level. Sure, the levels of bureaucracy aren’t completely gone (ie- read our entire adoption blog A Wide Sea for confirmation) in addition to Alexander getting to help me spend 20 minutes on-hold with the IRS just last week. Which, by the way, for those of you with little kids who love phones, they’re not only excited to get to hold the phone, but it plays music! Although I’m photo-documenting just about every second of this kid’s life, I wish I would have snapped a photo of him totally jazzed to be on hold with the IRS. Seriously, it made his afternoon! May we all be so happy about this!

But back to the COC (Yes! One more acronym!) It arrived on– get this– Constitution Day! We did manage a photo of Alexander with his certificate, but it contains so much sensitive information, that it would basically look like a blank sheet once we fuzzed out all the important stuff. It does have a photo of him taken before his medical appointment in China; it just hit me that his official photograph for USCIS is a slightly wrinkled maroon pocket t-shirt and madras shorts. Since this is practically his father’s summer uniform, it seems only appropriate that it’s now on record in perpetuity as “like father, like son.”

Now that we have Alexander’s proof of citizenship, we were able to file for his social. We had a thrilling trip this morning to our local SSA, and within 15 minutes, we were in and out. It took longer to unfold the stroller and sign in than it did to take care of paperwork.

We rounded out our day post-government with our rhodendron purchase and stopping at the library to get his library card and check out his first book. He was his normal chatty, perky self, and soon we had several fellow toddlers and their moms around us sharing drool, random vocalizations, and what board books looked tastiest to teethe on. Alexander left with a Sandra Boynton book about dinosaurs.  True, I gave him a choice of only Boynton books because: 1. they’re colorful, 2. they rhyme, 3. they’re small books, and 4. they’re short! Just like his mom would do, he selected the largest book with the most words. Reading the pages to him before he turns the page is like training to be an auctioneer. Still, he continues to be thrilled with his selection when he’s willing to take a 30 second break from doing laps around our coffee table.

Read faster! Read faster!

Read faster! Read faster!

Aside from getting the rest of our new little citizen’s paperwork in the mail, we still need to initiate readoption for the State of Illinois, which will provide him with a state-issued record of foreign birth (as opposed to trying to use a Chinese provincial document with location of “unknown”). If there’s one thing I’ve learned through all of this, Our Government doesn’t like the word “unknown.”  For all of the drama we’ve encountered so far though, all of Alexander’s medical paperwork has been a much-needed breeze.

Now, I just need to get this rhododendron’s roots established before we’re diverted again with Alexander’s next surgery, which is schedule for Oct 23rd. I can’t believe September is more than half over, but I feel as though we’re really settling into our family routine. I’ve always loved fall for the pumpkins, the apples, the mums, the cool weather, and the warm sweaters. Now that we’ve finally gotten our little guy in the System, we can sit back a little and enjoy autumnal bliss.

Tiny quarter-zip sweaters are reason alone to raise a son!

Tiny quarter-zip sweaters are reason alone to raise a son!

 

18 Months and Counting

In the midst of another understandably solemn and reflective September 11th, there is great joy in the Kelly house. Our little Alexander is 18 months old today.

This kid loves books!

I can’t help but wonder where he was 18 months ago– who and where his birthparents are, and how he was brought to the safety of the welfare institute. These are all big questions that will likely never be answered.  What we do know, through discussions with his caretakers, photo documentation, and most importantly, getting to know him, is that he is a joyful little boy with a lot of spirit who adapts to new environments with an uncanny ease (and loves having his photo taken!).

I’ve mentioned this in previous posts, but I really am amazed at just how fast he is developing. I know, I know, when it’s your own kid, it seems as though they are the cat’s meow; it’s only a matter of time until Harvard is knocking on your door to recruit your toddler! The thing is, when we first met Alexander, even with preparation, his frail state was frightening. He was pale, tiny, and too weak to hold a rattle. My aunt commented when watching the video of our first meeting that we looked fairly terrified holding him– ecstatic, but terrified.

Slowly but surely, we’ve watched him gain weight and meet developmental milestones with alarming speed.   He’s expanding his palate, and he’s gained over 4 pounds in a few months.  Sure, if you put him next to a healthy 18-month old, he’s comically small. He’s still in 6-month clothing, and there’s one 3-month old button down that still is a little roomy on him; similarly, his 6-month pants are still big. His hair is coming in much thicker now, and his head is finally on the WHO scale for his age, which makes finding shirts that can fit over his head an adventure. We’ve also seen him go from not being able to sit up to by himself… to scooting and crawling… to pulling up… and now to standing and attempting to walk by himself with support, all in the span of a little over 2 months!

One of the most entertaining developments as of late is that Alexander absolutely loves books. If Brian or I sit down with a book, especially one of Alexander’s books, he squeals and starts charging towards us and will happily sit in our lap and turn pages as we read.

Our little man reading with his dad

Our little man reading with his dad

Happy 18 months, little guy! You’ve given so much joy to us in just a few months and we are incredibly blessed to have you in our lives!

Whine and Cheese

This year’s anniversary was memorable.

During previous years, we’ve gone out to dinner, even taken the day off to enjoy some laziness at home or a local jaunt. This year, we were up bright and early and off to yet another surgical appointment for our little guy.

We were really relieved to hear from our surgeon that Alexander’s repaired soft palate seems to be holding. He’s hopeful that the repaired soft palate will gently pull the hard palate in, and in early 2014, that Alexander will be all set for his hard palate reconstruction.  As for his lip, we’re letting everything heal a bit before going back for attempt #2; in the meantime, we’re using some surgical tape during evening hours to slowly pull together his upper lip. As you might imagine, taping an 18 month old’s upper lip before bed isn’t the easiest thing in the world.

All in all though, we had so much to celebrate this year. We decided our anniversary and Alexander’s good post-op surgery news was reason enough to make a trip to Goose Island Brewpub, one of our favorite spots in the city. Alexander seemed to enjoy the place, and he walked out with quite a few complementary coasters.

Two tiny thumbs up for Goose Island! Bring me more coasters!

Two tiny thumbs up for Goose Island! Bring me more coasters!

We capped the evening with opening one of our cellared bottles of wine from Italy. We purchased enough bottles to last from our 5th anniversary to our 10th– when it’s time to go back! (ha!) Alexander had experienced enough for one day, he provided a little additional whine for us. Nothing says celebration in the Kelly house like one of my famous cheese platters.

Perhaps the best thing that has happened to us as of late though, is that Alexander’s strength and development is really taking off.  He’s crawling like there’s no tomorrow, and he’s now started to stand and move around the room with support. Seeing our little boy standing up and clapping with enthusiasm, even if just for a minute, almost makes me want to tear up a bit.  Similarly, I have been slowly introducing signs to Alexander, and he can recognize mama, daddy, and cat; most recently, he’s started signing back– first with “baby.” Seeing how much he’s changed in the last two months leaves us in awe, and we can’t wait to watch him continue to grow.

 

Showing off his walking skills while Valentine the cat observes in terror

Showing off his walking skills while Valentine the cat observes in terror

Little Fish

The second our car backed out of the driveway at grandpa and grandma’s house in Peoria, we could hear snoring coming from the backseat. Alexander didn’t even wake up when we stopped at Sonic for a roadtrip cherry lime-ade, but he was all smiles and claps when we unbuckled him at home. As the number of yawns and whines increased throughout the night before bed, we knew this kid was exhausted. And true to our predictions, he was out the second his head hit the pillow. There’s really only one reasonable explanation for this:

He survived his first Kelly wedding extravaganza.

Before we met Alexander, we were a little concerned about how our son would handle social situations and large crowds– and we both come from extremely large extended families. We had read that it was fairly common for children in institutionalized care to have difficulty with this; sadly, we were prepared to have to slowly introduce Alexander to his new and incredibly large family. We wondered how long it would take for him to feel comfortable with such a loving, and to be frank– intensely loving– family.  After a few small gatherings close to home with friends, we realized that our little man was not only ready for social situations, but that he was ready to meet The Family.

This kid is ready to party, Kelly style.

This kid is ready to party, Kelly style.

Sadly, we weren’t able to attend the wedding proper because of logistics, but after a night of rest, Alexander got to meet some of his uncles and aunts (Brian’s siblings) and his cousin Will. We made a trip to visit Brian’s cousin Dianne, who hosted a lovely brunch for us, and Alexander got to meet yet more of his family.

If you’d ask Alexander what the highlight of his weekend was, he’d have one answer– the pool! We brought his tiny trunks to the post-wedding pool party, and after much glad-handing and clapping, Brian introduced our little fish to the water!

And into the water!

And into the pool!

He would have spent the entire afternoon in the pool if we let him.  This kid LOVES the water!

He would have spent the entire afternoon in the pool if we let him. This kid LOVES the water!

 

After a wardrobe change (and surgical cuffs replaced) and yet more family greetings, Alexander decided it was time to get the real skinny on the family by catching up with his generation:

"Lou, help a cousin out and get these cuffs off me!"

“Lou, help a cousin out and get these cuffs off me!”

Overall, our little man did wonderfully considering all the new faces and friendly cuddles.  We were truly overwhelmed by the excitement for our little man, and he shared their enthusiasm!

Though Alexander really enjoyed the hustle and bustle of the weekend, I think he enjoyed getting to meet his aunts and uncles the most.

Alexander with his Aunt Julia

Alexander with his Aunt Julia–both famous for their smile and laughter!

Uncle Jon teaching Alexander the fine art of stacking cups (I know the contrast isn't great in this photo, but I love their silhouettes!)

Uncle Jon teaching Alexander the fine art of stacking cups (I know the contrast isn’t great in this photo, but I love their silhouettes!)

This weekend was a great reminder of how great technology can be. We are grateful that so many friends and family continue to follow along with our adventures through our blogging; it was heartwarming to see so many people delight with us in how much our little man has changed since late June. Although we have a long road ahead of us (and many more trips to the hospital!), the joy of being surrounded by those who love us makes everything easier.

A Boy and His Clam

“Kathleen, there’s no seventh floor.”

This is what started out one day that will live forever tucked away in our hearts.  As many of you reading this have already experienced or will someday, taking a family member to the hospital can be a stressful and overwhelming experience. In the case of taking your child to the hospital, a whole new set of worries come into mind. We knew that once we brought Alexander home in July, that we had many, many trips to the hospital in our future. We’ve tried to stay lighthearted through everything so far, and *knock on wood* it has seemed to help ease our little man’s stress levels as well.

So back to mystery of the seventh floor. When it’s 5:59 AM, and you’re told to report by 6 AM for pre-op with a kid who doesn’t understand why he didn’t get breakfast, the last thing you want to experience is getting lost. In our case, it was not even being able to find the right floor, let alone office. This was not the first, nor will it be the last of my Mega Mommy Fails. In the chaos of handling logistics, precertifications, and whatnot, my handwritten notes from the surgical office mentioned 6 am, 7:30 and a few acronyms. I didn’t pay that closely to the location, I just knew it was on the 7th floor.

However, when we got to the hospital, there was no 7th floor. I panicked and figured that I misremembered, so we went up to the top floor (6 for those of you keeping track) which was identified as Waiting- General Surgery. It was a ghost town. Seriously, there was NO ONE stationed at any desk, waiting around, or anything on an entire floor of a huge city hospital. Alexander and I continued to orbit the top floor, while Brian headed downstairs in search of someone, anyone really, who might know what was going on.

Luckily, Brian quickly found out downstairs that we were in the wrong building, and soon we were shuttling our little guy off to the new wing. As we were one of the first surgeries of the morning, the patient reception desk was more than a little eager for our arrival. The 7th floor “sky lobby” was incredibly dramatic. I joked that it looked the lobby of a really swanky hotel– the entire floor was floor to ceiling windows with a beautiful view of Hyde Park and the Loop, and a player grand piano.

All all-time high/low: our surgical waiting room. Seriously, it was just stunning and a great place to stress out!

All all-time high/low: photographing our surgical waiting room. Seriously, it was just stunning and a great place to stress out!

Our “pre-op concierge” (yes, I just said that) whisked us off to check-in, where the intake nurses cooed over our little man. Apparently, very few pediatric surgeries are done in the main hospital (most are done next door at the children’s hospital), so getting short patients is quite the treat. They managed to find a tiny hospital gown and those nasty hospital socks, and soon it was revenge of the koalas in spaceships all over again.  We began the grand procession of specialists, as the various medical teams stopped by to introduce themselves and get us to sign off on lots of forms. The highlight was Alexander clapping on cue for the Anesthesia team after their spiel– the look on those doctors’ faces was priceless. It was a much-need lighthearted moment before the inevitable. Pretty soon though, we bid goodbye and good luck to our little boy, and one of the Anesthesiologists carried him away into the OR. I might have wept just a little after they took him away, and Brian’s eyes looked a little misty too.

Convincing his mama that he'll be fine, as long as she takes care of Mr Clam and Kokkonisto

Convincing his mama that he’ll be fine, as long as she takes care of Mr Clam and Kokkonisto

Without getting into too many details (too late!), the overall surgery went great. What wasn’t so great was dealing with the pager they gave us to keep track of our man. With the idea of giving families more freedom, they issued everyone restaurant-style beeping/vibrating pagers; they’d use these if any news came in from the OR regarding the status of a patient. We were grateful to be able to leave the building and get a coffee and some air, but it felt as though that blasted pager went off every 15 minutes. I think you all know how jarring those restaurant pagers can be, so you can imagine how our nerves were shot by the third page (most of which were just messages like “Alexander’s doing great!”) The funniest surgery-related anecdote is that as we were returning from Starbucks with some much-needed caffeine, we ran into our anesthesiologist with coffee and a donut. Yes, the one that introduced himself as the person who’d be taking care of Alexander! As soon as we made eye contact and he saw my jaw drop, he ran up explaining that Alexander was doing well and that his team had just rotated him into a few minute break. It made sense, but it definitely freaked me out when  first saw him.

Mr Clam waiting not so patiently for his friend in surgery

Mr Clam waiting not so patiently for his friend in surgery

Little man got all of his anticipated surgical work done for #1 (of about 4 or 5 total) in addition to some auditory repair. All the surgeons seemed really happy, and we were back in the recovery room ahead of schedule. Unfortunately though, we ended up spending close to 6 hours in recovery with some fantastic post-op nurses and anesthesiologists; Alexander didn’t want to wake up but did finally thanks mostly to Mr Clam and Kokkonisto, the sheep blanket from Grandma Amy.  Unfortunately, his hungry raging threw his heart rate monitors into a frenzy. I was touched how kind the staff was and also how ingenious the nurses were in figuring out how to comfort a patient much smaller than they were used to (which included creating a makeshift cleft feeder out of various medical supplies!)

And now for a quick aside– I take back anything bad I’ve ever said about anesthesiologists before (not that I’ve said much).  I was truly surprised at how caring the entire anesthesiology team was long after the surgery was over. The Attending (aka donut man) checked in on us every 20 minutes or so, and ended up calling over to the children’s hospital and insisting on our placement in a higher-care unit (as opposed to a general floor). I also caught him looking from a distance at Alexander’s monitor, and saw him give a little fist-pump when our little man started to calm down. The doctor totally lost his composure when I called him out that I saw him relieved. He admitted that he was really worried for our little guy, and seeing that level of compassion in a doctor who normally never sees the patient awake was refreshing and somewhat redeeming.

Alexander’s transfer and stay at the children’s hospital was exactly what we expected– a lot of primary colors, whimsical nursing scrubs, and friendly staff. We attempted to sleep a little last night, but it’s hard to sleep when your kid is howling in pain.  Luckily, we were able to wean our guy off the heavy meds last night. After eating breakfast this morning, he threw his cuffed arms into the air demanding freedom for him and his stuffed animal entourage– which included a stuffed sheep blanket, a calico cat, and of course, Mr Clam. Because of his facial surgery and that fact that he’s 17 months, we have to use little stiff cuffs that cover his elbows and restrict his movement. This way, Alexander can still move around but won’t be able to rip out his stitches or try sticking toys/anything into his mouth. He absolutely HATES it, but he’s adapted well so far. Brian and I worried that he’d be limited in movement, but as soon as we got home, he took off crawling across the living room floor.

We were out as soon as we got clearance, and the three of us made it home safely by early afternoon today. We celebrated in true Illinois fashion by getting an emissions test on my car and running a few errands  (which was mostly to try and keep awake and not take a too-late nap). Now, our little man is sleeping somewhat peacefully as we finally unwind from a pretty big parental experience. Our surgeon would like to schedule the next round of work for about three months from now, assuming Alexander continues to recover well; though I’m sure each surgery will be an adventure unto itself, I can promise you one thing–

I’ll be able to find the seventh floor!

A formal post-op portrait with Mr Clam. This photo was immediately followed by a loud "La!"

A formal, rather serious post-op portrait with Mr Clam. This photo was immediately followed by a loud “La!”

And for those of you wondering, Alexander hasn’t lost his smiles or la’s! We think it hurts him to smile a little now, because he does still smile, but the stitches do impact how long he can hold it. He’s still figuring out how to use an upper lip, but after hearing several la’s and watching him eat, he’ll get the hang of it in no time!

Waiting

I write this post with an optimistic but slightly wistful tone. Tomorrow morning, my little boy will be going into surgery.  Although I’m certain the sight of him with a little IV and hairnet will make me well up with tears (I’m getting sniffly now just typing it), he will perhaps surpass his current maximum cuteness potential.  Packing for his hospital stay, I’ve tried to think of things that will soothe and comfort him– and as of now, most of what I have packed is stuffed animals and his beloved sheep blanket, Kokkonisto.  Having taken great pains to rid him of his pacifier, he’s been struggling the past few days to latch onto something for comfort aside from our presence and the ubiquitous Mr. Clam.  I just hope that seeing us as he’s wheeled out of recovery will be a hint of stability for our little man.

When I corresponded with a fellow adoptive cleft palate mom before we brought Alexander home, she told me that you experience a form of loss when your child first goes through surgery.  Her words didn’t quite resonate until now. When I think of Alexander, I first imagine that big, wide grin that was so heart-warming and comforting when we wondered in China whether we had the stamina to be his parents.  I think of his signature “La” and how it will be impacted and altered by the trauma of his surgeries.  Then I take a moment and think about everything he experienced in life before meeting us, and yet even with the huge change in being handed over to complete strangers from a different continent who smelled and sounded different, he adapted. I know, I know, everyone says kids are resilient and bounce back quickly, but let’s face it.  No one would volunteer their child for surgery unless it was absolutely necessary. (Heck, I know most people evaluate the minor bumps and bruises of their children in hopes that a bandaid and ointment will do in place of an 8-hour trip to the local ER. I mean, they didn’t lose THAT much blood, did they?!?).

For months, I had printed photos of Alexander on my dresser in our bedroom. One of the first things I’d see in the morning and last things before bed was the smile of our future son. I’ve tried not to think about it too much, but I do wonder how his face will change, his voice, his smile… While I am absolutely ecstatic about his surgeries in light of their long-term impact, I will freely admit that I’m not looking forward to the immediate future when he’s home, scared, and most likely in some form of discomfort and not in any mood to be his jovial self.  I also feel a little saddened knowing that his name for me (“La La”, as a response to my coaching of “mama”) will most likely change. Although I know that all kids change and grow, I’ll always keep his first enthusiastic “La La” in response my to hand signing of mama in my heart long after he’s more articulate and trying to convince me why his curfew needs to be later.

And so I don’t end on a sad note, I’ll leave you with some photos from this past weekend, when my Aunt Carla came to visit and meet with Alexander. There was a lot of smiling and clapping, and Alexander even had his first experience on a swing set and slide. It was quite the weekend.

Once again, proving that it'snext to impossible to photograph this kid without him smiling. Look Mama! No pacifier!

Once again, proving that it’s next to impossible to photograph this kid without him smiling. Look Mama! No pacifier!

I think they get along.

I think they get along  — posing with his Great Aunt Carla (emphasis on the great!)

This kid is going to LOVE Six Flags.

This kid is going to LOVE Six Flags.

Alexander inquires as to whether Mr. Clam can also ride on the tractor from Great Aunt Carla.

Alexander inquires as to whether Mr. Clam can also ride on the tractor from Great Aunt Carla.

 

 

I ask you, dear friends and loyal readers, to keep Alexander and his parents in your thoughts and prayers tomorrow morning. We could certainly use them.

Tough Love

Although I had a product review all ready to post, I decided to put that on hold in light on the recent ongoings at Casa Kelly. The biggest news here is that Alexander’s first surgery has been scheduled for this Monday morning, Aug 19th, at Comer. It’s likely to be mostly lip reconstruction with a little palate, the majority of inside work to be done in subsequent surgeries (probably 3 or 4 others a few months apart).

It feels a little odd to be preparing our little guy for surgery, considering that we can’t really reason with him about short term pain and discomfort for long-term gains. Similarly, he didn’t think to call our healthcare provider to begin the process for pre-certification of his surgery.   I feel strangely grateful to have gone through so many hospital stays myself, as I feel fairly prepared for logistics, and the surgical team was surprised when I called to ask about the pre-op instructions. “Normally, families don’t call to ask about the last-minute marching orders.” I politely said that I hated being tied to the phone the entire pre-op day waiting for the intake folks to call, which inevitably ended up in a game of phone-tag. So in short, we’re all set for Monday and will most likely just have one overnight stay.

So where does the title fit in? Well, as I mentioned in a previous post, Alexander’s surgery and repair will mean the End of the Pacifier (said in a deep, dramatic voice). It’s one thing to have a doctor tell you this, and it’s totally different to try and prepare your little kid for something they can’t fully understand. I still tell him every time he’s eating with the pacifier that next week, he won’t be able to use it; I know I’m saying it mostly (all) for my benefit, but it helps to vocalize those words considering the chaos that ensues.

Brian and I have developed a few “games” which involve asking for the pacifier or distracting him in order to help him realize he can swallow without it. Though he’s come to rely on it, we’ve witnessed firsthand that it’s not essential to his eating. It definitely makes it easier for him, and frankly, I can’t really blame him for using it. He found a way to make eating easier/possible, and so why not use it? The games have worked for small amounts of time, but this kid is smart. The original game of “please give me your pacifier” resulted with him trying to just graze our hand with it but hold on for dear life. Similarly, when we’ve tried with the spoon and no pacifier, he just does his best effort to knock the spoon out of our hands.

Well, today, Alexander’s mama busted out the tough love. I snipped the pacifier.

I started with a few small holes during “Elevensies” and worked my way up to a full hole during Teatime. I kept snipping off more and more, with dinner being a noticeable hole, and bedtime bottle looking pretty severe. He seemed a little confused around dinner time, but everything hit the fan tonight. The second he put the pacifier in his mouth, he let out a shrill cry and looked at me with an unmatched fear and fury. Something was different and wrong. So very wrong. Brian looked at me from the kitchen– we knew eventually that the next snip would be one too many, and this was it.

The good news is that Brian and my attempt to make him swallow on his own was successful– he drank his entire bottle in the usual time frame. The only big difference is that he was howling and turning red with rage this time. While it kills me to see our little guy unable to be soothed by something he’s depended on for so long, we know that if we can get him not using the pacifier now, post-surgery shock of no pacifier might be a bit easier. He’ll have (little) arm restraints when he’s post-op for at least a week that will keep him from bending him arms (ie putting his hands in his mouth or anywhere near his face), but I’m sure the anger of no pacifier will still be present.

Although we feel incredibly fortunate for the laid-back son finally asleep upstairs, we knew that having a child with medical needs would come with many challenges.  Tonight, all I kept thinking during the rage was “I’m not your friend, I’m your mom. Those are two completely different things.” I can only hope that one day in the distant future that Alexander will consider me a friend, but for today, I’m more than thrilled to be his mom.

And for now, we’ll take things one snip at a time.

 

The Pacifier: An Epic Tale

I’ve been waiting to post this story for a LONG time. Several of you have asked us about stories we didn’t feel comfortable posting during our trip to China. Sure, our trip wasn’t perfect, but we didn’t really have to censor much. However, there was one fairly significant story that we didn’t relate in detail until now… and so I bring to you….

The Pacifier: An Epic Tale

The elusive pacifier

The elusive pacifier

When we first met Alexander, he was happily using the pacifier we had seen before in many, many photographs. I had considered purchasing a few additional pacifiers, but I figured that he’d be using what he came with (if at all), and I didn’t want to encourage using a pacifier if he didn’t show up with anything.

Our first day with Alexander included trying to figure out how he ate. Thanks to some assistance from his nurse and some ingenious thinking, we realized the next morning that he used his pacifier to help form a suction when trying to eat. What nurses considered fussy eating was really our little man trying to close the gap in his lip in order to eat.

We were thrilled! With this new-found knowledge, we were in business. What took the Beijing folks over an hour we could then accomplish in less than 30 minutes! Alexander was happy, we were relieved, and we thought the problem was solved. However, little did we know that our concern was just starting!

A few days into our time with Alexander, we noticed that he was not only sucking on his pacifier, but that he was chewing on it… really hard. We could hear him grinding his teeth when the pacifier wasn’t in, and we could only guess what was happening when he was dampening the sound with the small piece of rubber. As you might guess, one result of our son’s cleft palate is that some of his teeth are rather misaligned, so the sound of teeth on teeth is sadly fairly common in our home. But back to China… when we finally got up the courage to look at his pacifier, our fears came true– he was slowly ripping his pacifier apart! The pacifier had been ripped about a third of the way through, which meant that it was only a matter of days until he ripped it completely off, either accidentally swallowing it or just ruining any chance he had to eat.

This wouldn’t be nearly as terrifying if Alexander hadn’t shown us that he needed the pacifier to eat. We tried experimenting by taking the pacifier away, but he refused to eat without it. Even if we presented a bottle to him without handing him his pacifier first, he would freak out. We knew that we needed to find a replacement stat.

Brian and Bill tried several locations and multiple pacifiers– each time, we’d gingerly hand the pacifier to Alexander and wait nervously. He’d pop it into his mouth– you could see him trying it out… then he’d eject it with a frown. Not the right one! After several days of unsuccessful pacifier hunting, we began to give up hope. The “funny” part in all of this is that what Alexander’s pacifier was is your run-of-the-mill Nuk variety– nothing special. In China, however, it’s next to impossible to find this brand.

Our guide, just as concerned as we were, took photographs of multiple angles of Alexander’s pacifier and immediately began trying to contact his adoption/consulate friends in Guangzhou (while we were still in Taiyuan). Meanwhile, I posted to multiple China adoption message boards trying to see if anyone who was in-country either in Guangzhou or on their way there might have a Nuk.  Within hours, I had over 20 responses from adoptive families, and Bill had heard back from multiple adoption guides. While I just had a few leads, Bill found a woman in Guangzhou with an exact match waiting for us.

As soon as Bill arrived in Guangzhou, he took a cab across the city to pick up the coveted pacifier. He brought what looked like almost the same thing back, and we watched nervously as I handed it to Alexander. He looked at it, paused, and then placed it in his mouth… and it stayed there! We were saved!

Though he continued to chew away on his new pacifier, we figured that we’d have enough time to get back to the USA. We did, and one of the first things we did after returning home was to find some back-up pacifiers. Comically, we must have purchased the wrong size the first time because he spit out the first round we purchased for him here too!

Now that Alexander’s gearing up for surgery, we’re trying to get our little man off the pacifier. I’m spending several hours a day working with him to help his realize that his reliance on the pacifier is more psychological than physical; with enough effort and concentration, he can swallow and clear his throat completely. I ask him to hand me his pacifier, and he hands it over. He promptly starts to bawl, but then he usually can swallow while whining and begging me for the pacifier back.

Thinking backward, it feels like a long time since we were all petrified that our son wouldn’t be able to eat and end up in the hospital on an IV. Now, we’re preparing him for the hospital and asking for his pacifier back….